Rare Diseases and Serious Illnesses
Childhood cancer
Light of Hope
https://www.svetielkonadeje.sk/o-nas
Square. L. Svobodu 4, 974 09 Banská Bystrica
Tel.: +421 908 073 073, E-mail: office@svetielkonadeje.sk
Lymphoma and Leukaemia Slovakia Civic Association
Our organization established a website in Ukrainian language aimed on Ukrainian oncology patients and their relatives who crossed Slovak boarders and are looking for help in the area of cancer treatment. Our workers are gathering important information, providing contacts and are mainly trying to assist in cooperation with other organizations and the Slovak government.
https://www.lymfom.sk/onkohelp-ukrajina/
Rare diseases
FMF Slovakia
Online support group for autoinflammatory rare diseases (FMF, PFAPA).
https://www.facebook.com/groups/1076873316554980
Eliška Kapitáňová, +421 918 350 858, ekapitanova@gmail.com
Slovak Alliance of Rare Diseases
List of centres and experts working on rare diseases in Slovakia: https://sazch.sk/pracoviska-pre-zch/
Rare Diseases Civic Association
https://www.zriedkavechoroby.sk/o-nas/¨
Williams Syndrome Society
http://www.spolws.sk/index.php/kontakt-topmenu-132
Hospice and Palliative Care
Plamienok („Little flame“)
Plamienok is a non-profit organization that is a pioneer of development of children’s home palliative/hospice care and grief counseling and therapy for children and their families in Slovakia. It provides home palliative treatment and care to the seriously, terminally ill free of charge. Plamienok offers in Bratislava home visits by a doctor, nurse and social worker to seriously ill children who came to SR as a result of the events in Ukraine. Parents who accompany these children can use consultations with experts.
Contact: Jarmila Kováčiková, e-mail: kovacikova@plamienok.sk, tel.: +421 907 377 808
